Stroke Recovery Association of BC

Resources

Other Organizations & Resources

We have compiled a list of organizations, websites, and other sources that may be able to offer valuable resources and information beyond our website.

Organizations

GF Strong Rehabilitation Centre

Situated in Vancouver, GF Strong offers regular community education sessions called Understanding Stroke. If you can’t attend one they can send you the information by email, fax or through the mail.

The Heart and Stroke Foundation (HSF) Canadian Partnership for Stroke Recovery (www.canadianstroke.ca)

Headquartered at the University of Ottawa, the HSF Canadian Partnership for Stroke Recovery comprises these partners — the Heart and Stroke Foundation, Sunnybrook Research Institute, Baycrest, the Ottawa Hospital Research Institute, uOttawa and Memorial University of Newfoundland and Toronto Rehab.

Over and above targeted research on brain repair, exercise after stroke, small vessel disease and dementia, the HSF Canadian Partnership for Stroke Recovery will:

  • conduct clinical trials to test new rehabilitation therapies;
  • fund emerging and innovative stroke recovery research;
  • advocate for better services for patients and families;
  • produce resources and tools to deliver the latest research knowledge to the people who can use it; and,
  • foster networking and collaboration in the stroke recovery community.

To learn more about the Partnership, please visit www.canadianstroke.ca

Stroke in Young Adults
Guidebook on Stroke in Young Adults provides tools, tips to promote recovery
www.canadianstroke.ca/news/stroke-in-young-adults/

Aerobic Exercise After Stroke
How aerobic exercise can help you after sroke
http://www.canadianstroke.ca/wp-content/uploads/2015/02/CPSR_Guide_Patients-English_WEB.pdf

Heart and Stroke Foundation (www.heartandstroke.ca)

The Heart and Stroke Foundation offers the following:

1.800 InfoLine    1.888.473.4636   www.heartandstroke.ca

Trained volunteers are available on weekdays to answer your questions about heart disease and stroke, recovery, community resources and your ability to reduce the risk of another event through increasing physical exercise, eating a balanced diet, not smoking, limiting alcohol and reducing stress.

Resources below are available through the InfoLIne or go to Heart and Stroke Publications

  • Your Stroke Journey: A guide for people living with stroke
  • TIA Fact Sheet
  • A Family Guide to Pediatric Stroke
  • Stroke in Young Adults: A resource for patients and families
  • Taking Charge of Your Stroke Recovery: A survivors guide to the Canadian Stroke Best Practice Recommendations
  • Healthy living brochures and fact sheets

Living with Stroke Program
The Living with Stroke Program™ is a FREE 7-8 session program (2 hours once a week) is provided by trained volunteer facilitators and stroke survivors.  The program assists survivors and their carers to cope with the changes in their lives due to the stroke and to problem solve to address their own individual recovery needs. It is a supportive program to empower and build confidence in a small group setting.

To PRE-REGISTER for the next program in your community call 1.888.473.4636 ext. 8002 or go to www.heartandstroke.ca/livingwithstroke

Community of Survivors

Don’t face stroke alone. Let’s Connect   www.heartandstroke.ca/connect

This online community provides you with a monthly e-newsletter which includes, trusted and expert information, practical tips to help you live better, personal stories and advice from others and supportive resources to download.

Canadian Stroke Network (www.canadianstrokenetwork.ca)

The Canadian Stroke Network website aims to reduce the physical and societal consequences of stroke.

Getting on With the Rest of Your Life After Stroke
An interactive work book about setting goals, doing exercise, blood pressure measurement, medication diary, relaxation techniques, brain exercises, ideas for crafts.

American Stroke Association (http://www.strokeassociation.org/)

Tips For Daily Living videos featuring Stroke Survivors
A stroke can make every day activities challenging. These challenges may be due to a number of stroke-related conditions.
American Stroke Association have enlisted the help of volunteers who have been sending in their own adaptive tips and ideas on video. This volunteer-powered library shows tips and ideas from stroke survivors from all over the USA who have created or discovered adaptive and often innovative ways to get things done!
If you are interested in sending in a video all you have to do is to complete the submission form for a chance to be featured in their library and on ASA’s Facebook page “WhatWorksWednesdays”.
Click Here to Stroke Recovery Videos by the American Stroke Association

Websites

The best way to find information on the internet is to use an on line search engine like Google or Yahoo. Here are just a few to get you started:

www.brainstreams.ca
This website aims to improve education on the brain and brain injuries, to help reduce isolation and to promote opportunities for collaboration.

www.strokeassociation.org
The website of the American Stroke Association

www.worldstrokecampaign.org
World Stroke Campaign website lists stroke organizations around the world

www.fcns-caregiving.org/
Family Caregiver Network Society: Help and information for caregivers in BC.

http://www.rorc.research.va.gov/rescue/
RESCUE Website for Caregivers: an online lifeline to help caregivers keep their head above water.

http://www.sseeo.org
Stroke Survivors Empowering Each Other: Offering services for stroke survivors and caregivers

http://www.stroke.org
National Stroke Association USA

www.stroke.org.uk
Stroke Association UK

www.strokengine.ca

www.strokengine.ca/family
StrokEngine Family

http://www.fightingstrokes.org/
Fighting Strokes is a national registered charitable trust whose mission is to inspire and empower stroke survivors to help improve their stroke recovery.
They offer practical support and advocacy to those affected by stroke with the aim of

http://selfhelp4stroke.org/

vancouverstrokeprogram.com

The Vancouver Stroke Program is based out of Vancouver General Hospital (VGH). The Program provides highly specialized inpatient and outpatient medical care for patients with stroke and cerebrovascular diseases, educates medical trainees, and conducts stroke related research.

‘My Stroke’ YouTube Link
Brian Redd’s YouTube page ‘My Stroke’ has lots of interesting and useful videos about life after stroke from the perspective of a survivor. The videos start when he is in hospital and go on to tell the story of his recovery including getting back to work as a DJ.
https://www.youtube.com/watch?v=xqtWbH7iPrs

Other Resources

TED talk by Jill Bolte-Taylor

This TED talk recounts a researcher’s personal experience with stroke.
http://www.ted.com/speakers/jill_bolte_taylor.htm

The Brain That Changes Itself (Book & Documentary)

This book by Dr. Norman Doidge explores the plasticity of the human mind. CBC later featured a documentary based on the book.
Dr. Norman Doidge’s Website: http://www.normandoidge.com/
The Documentary: http://www.youtube.com/watch?v=t3TQopnNXBU

Brain Attack: A Stroke Survival Guide

A 30-minute clip of the popular “Brain Attack” show created for USA network TV by National Stroke Association in partnership with NBC Universal and Al Roker Productions. National Stroke Association is making this 30-minute video available for educational use only and to help promote raising stroke awareness. Individuals and groups are free to use or embed this video for educational purposes only.

http://nsa.convio.net/site/PageServer?pagename=brainattack

Driving After Stroke—Family/Patient Information

Will I be able to drive after my stroke? People recover at different rates after a stroke. Some people will be back driving after a month, others may take longer. Studies suggest that about half of those who experience a stroke return to driving. When, and if, you return to driving depends on many factors. A health professional should speak to you about driving. If no one mentions driving, it is important that you or a family member ask a health professional, possibly your doctor or an occupational therapist, for information. It is important for your safety and the safety of others that your readiness for driving be assessed.

Please see attached document for more information.

Stroke Information & Resource Guide

There’s a comprehensive new Stroke Information & Resource Guide Written by David Patterson and last updated March 10, 2016 now available online at ACLS Training Center’s website here:

https://www.acls.net/stroke-information-and-resources.htm

It covers:

  • What is a Stroke?
  • Definition of Stroke
  • What is a Hemorrhagic Stroke?
  • Stroke Prevention
  • Lifestyle Tips to Prevent Stroke
  • 9 Ways to Prevent a Stroke
  • Warning Signs of Stroke
  • Signs and Symptoms of Stroke
  • Women and Stroke
  • What should I do if I am having a Stroke?
  • Response to Stroke
  • The Gold Standard of Stroke Treatment
  • Time is Brain – Treatment for Stroke
  • How is Stroke Treated?
  • Stopping Stroke in Its Tracks
  • What is the Standard Treatment for Stroke?
  • Treating Stroke – US News and World Report